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EB - Epidermolysis Bullosa - is a genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. EB can mean a life of extreme pain, disability and, at its worst it is fatal in infancy. People with severe EB are likely to contract a fatal skin cancer. DebRA provides specialist EB nursing, funds extensive medical research and provides counselling, welfare, respite and advocacy. Charity Registration No 1084958 DebRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a rare genetic condition which causes the skin to blister and shear at the slightest friction or even spontaneously. There are at least 5,000 people living with this devastating condition in the UK and 500,000 people worldwide. DebRA provides an expert team of nurses and social care staff to work directly with families. The charity also commissions world-leading research into the condition with the aim of finding effective treatments and, ultimately, a cure for EB. DebRA relies on the generosity of the public to carry our its vital work improving lives and giving hope.
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2019 Edinburgh Marathon Festival
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